Ellie's Scoliosis Diary
A blog where I explain my life with and around my scoliosis. If you want to ask me questions about my scoliosis or commiserate about yours I am happy to help.
Wednesday, June 28, 2017
less than a month away
My surgery is less than a month away... Not something I ever thought I would say, nor wanted to say. Now with less then a week before my pre op appointment everything seems to be falling into place. My wonderful ballet teacher said I could even dance up until the day of my surgery, so in-between Observation Week, semester exams, and Thanksgiving, this last month of dance will be busy. I received my surgery information in the mail several days ago and my depression subsided for now, but the closer I get the more excited and nervous I become.
Tuesday, December 27, 2016
3 weeks post op
Ok, so I know I haven't been keeping up with this blog (I have a really good excuse... once I think of one). The surgery is over and done with and I am on the mend. Almost three weeks post op and I feel so much better, I wish I could just pirouette around the kitchen and start dance back up immediately! BUT my doctor said absolutely NO dance for 8 months. Eight months?!? I am going to die from hyperactive suppression! I don't know what will come first, the horrible idea of loosing my splits or death by lack of dancing. So, as I have spent 3 weeks of the 4 months either by myself or walking laps around the staircase, I have found out things I can't do by myself such as: getting dressed or putting my socks on, standing up from sitting on the stairs (I'm smart, also don't sit on the stairs), getting my school books out of the cabinet, and washing my hair in the shower (to which I need my lovely sister's help).
Please enjoy the video of my x-ray progression and trip to the hospital. So much fun!
Started at 20 degrees and ended at 60, and after my surgery it ended up being 19 degrees.
Please enjoy the video of my x-ray progression and trip to the hospital. So much fun!
Started at 20 degrees and ended at 60, and after my surgery it ended up being 19 degrees.
Thursday, September 29, 2016
The world is ending and Ellie's depressed!
Well, if I have one more drop of stress added to my life I will overflow!! I have felt sick for two weeks and feeling sick and life do not mix, so how do you deal with all this life and stress? You cry, a lot.... And whine, and beg for attention, and look on the calendar and count how many days before surgery. Maybe I'm over reacting right now, but back surgery seems like the end of the world. All this planning of how long will I be out of dance? How long will I be sleeping downstairs? What am I going to do with my beloved loft bed that I won't be able to use afterwards? Just that alone makes me want to cry! I feel as if this wonderful idea of being done with my brace has turned into a horrible nightmare and all I can do is sulk in my pajamas (you can't get me out of them).
Lets talk about dance, I have dance four days a week and thats about 13 hours a week. This includes technique, pointe, pilates, modern dance, and contemporary. Even though dance makes me happy it hurts my back a lot to do some of the things, like holding arabesque back at the barre and balancing, Attitude derriere balancing at the barre, and cambre to the sides and back. I am hoping that after my surgery I will still be able to do the majority of them.
This last weekend on Saturday after a LONG day at dance I was ready to have a nice relaxing night with my mom when Ashley (my older sister) texted me saying she was going to my great aunt's 75th birthday party and that she wanted my to go with her, which at that exact moment my grandparents were just walking out the door when I told them. My grandma ran me up the stairs and dressed me faster than I could speak and we were in the car driving to the party in less than 2 minutes.
At the party I was the youngest person there other than a 3 year old boy. I swore that if my sister did not show up after all I would tear my hair out and about three-seconds after I said that out loud I saw her walking down the sidewalk. There is something about being with my sister that makes everything better for the moment and the universe melts into nonexistence along with all the stress. Thank the Lord for siblings because I would be a mess without mine!
On Sunday we went to the Minnesota Renaissance Festival, a family tradition of ours for about 30 years. Even though we didn't do a lot or buy anything, just walking around with my mom after the long break apart was absolutely magnificent! We got to the festival at 10 am and left at about 3pm because it started to rain. By the time we got home I went back to bed and slept for 6 hours only to awaken to being the only one up. I walked down the stairs to raid the pantry because I was starving and found my sister looking guilty as ever eating the last of the mashed potatoes (which is kind of what I had gone down to eat) and not willing to share her treasure with me, I settled on left over kettle corn and potato chips.
Lets talk about dance, I have dance four days a week and thats about 13 hours a week. This includes technique, pointe, pilates, modern dance, and contemporary. Even though dance makes me happy it hurts my back a lot to do some of the things, like holding arabesque back at the barre and balancing, Attitude derriere balancing at the barre, and cambre to the sides and back. I am hoping that after my surgery I will still be able to do the majority of them.
This last weekend on Saturday after a LONG day at dance I was ready to have a nice relaxing night with my mom when Ashley (my older sister) texted me saying she was going to my great aunt's 75th birthday party and that she wanted my to go with her, which at that exact moment my grandparents were just walking out the door when I told them. My grandma ran me up the stairs and dressed me faster than I could speak and we were in the car driving to the party in less than 2 minutes.
At the party I was the youngest person there other than a 3 year old boy. I swore that if my sister did not show up after all I would tear my hair out and about three-seconds after I said that out loud I saw her walking down the sidewalk. There is something about being with my sister that makes everything better for the moment and the universe melts into nonexistence along with all the stress. Thank the Lord for siblings because I would be a mess without mine!
On Sunday we went to the Minnesota Renaissance Festival, a family tradition of ours for about 30 years. Even though we didn't do a lot or buy anything, just walking around with my mom after the long break apart was absolutely magnificent! We got to the festival at 10 am and left at about 3pm because it started to rain. By the time we got home I went back to bed and slept for 6 hours only to awaken to being the only one up. I walked down the stairs to raid the pantry because I was starving and found my sister looking guilty as ever eating the last of the mashed potatoes (which is kind of what I had gone down to eat) and not willing to share her treasure with me, I settled on left over kettle corn and potato chips.
Tuesday, August 16, 2016
Mom's Going to Scotland!
My mom has been planning a trip to Scotland since she went the first time which was like 20 years ago. On August 13 (one day after my birthday) she left on the trip of her life! She got to go to Inverness, Scotland, for 4 weeks. Thats four weeks without my mom, I barely could even do one week at summer camp! What am I going to do? So this trip snuck up faster then we could have imagined and before we knew it my sister and I were with our grandparents and our beloved mom was all the way in... Scotland. Not like thats a bad thing but the last time our mom left it was overnight somewhere and I ended up in my grandma's bed, scared out of my mind. So with the first three nights done and over with and so far only one nightmare about people turning into sacks of flour (don't ask) I think I might be ok.
This week while we go crazy trying to find and sew pointe shoes and freaking out about school, my grandparents have been really nice and helpful with everything stress related. So this Thursday we shall go to the zoo (if it does't rain) and have fun with them like we did when I was little.
All the while my mom has started her own blog called Mom's going to Scotland so check it out because its really cool!
http://momsgoingtoscotland.blogspot.com
This week while we go crazy trying to find and sew pointe shoes and freaking out about school, my grandparents have been really nice and helpful with everything stress related. So this Thursday we shall go to the zoo (if it does't rain) and have fun with them like we did when I was little.
All the while my mom has started her own blog called Mom's going to Scotland so check it out because its really cool!
http://momsgoingtoscotland.blogspot.com
Summer Camp!
On Sunday morning we headed to the bus stop (which was at a gas station) and waited for the bus to come. When the time finally came (we got there an hour early) the big yellow bus came and we loaded up the trailer. Not many people were on the bus which surprised me because it was a big camp and being the only one at the bus stop I started to get nervous. I started to get more and more down the closer we got to camp because none of the other girls would talk to me. By the time the three hour bus ride was up we pulled into the camp parking lot and had to go through a health inspection. They looked in your hair and collected all the medicine you had and evaluated whether you were sick or not. Once I got to my cabin we had to unpack and meet our cabin leaders, mine was Sync. She was really nice and I liked her a lot.
I was starting to feel really home sick and I missed my mom and sister so I was on the brink of tears. By the time supper was ready, my friend Elizabeth had told me that the meals were the best ever so I sat down and looked upon the table and it was.... pizza.... I'm allergic to dairy. That was it, I was a pathetic teenager trying really hard not to cry... over pizza (and failing miserably). So my counselor got up and brought me a gluten free dairy free pizza that was so spicy I couldn't eat it. At this point I was so done I fled the table and ran all the way back to my cabin where I grabbed my fabulous baby food (packed for emergencies) and ate it so fast I'm surprised I didn't choke! I was so depressed and down because it wasn't what I had expected at all whatsoever! When Wednesday rolled around I texted my sister and my mom and immediately cheered up and was willing to participate in activities (though after this day I swear I annoyed the whole cabin by being too happy). On Thursday we had a rodeo and because I was in the horse program I preformed in the rodeo (we weaved our horses at a trot)! I was so excited I couldn't wait! Our whole cabin french braided our hair and set off down the road to the horse stable and sat on carpet squares waiting for supper to be served!
Once supper was over, we all gathered around the riding ring and waited for the entertainment. I will admit I was very impatient and wanted my turn to ride to come faster. The horses were very spooked so half of them didn't do what they where suppose to. When my group's turn to ride came, my horse was the only one not spooked and actually did the formation properly. On Friday we all hugged and said our goodbyes and got back on the bus. I sat with both of my friends and as one fell asleep the other listened to music with me. My bus stop was the first one on the way and by the time I spotted my mom and sister in the car I was once again a pathetic teenager trying with all her might not to cry. Once we stopped I ran off the bus into my mother's arms, sobbing, only to realize my luggage was still on the bus. By the time we got into the car I was so hysterical my mom handed me a piece of bread and I felt immediately better (she joked about me not being able to live without bread because everything at the camp was gluten free and dairy free together so I got no bread) and told her how wonderful camp was after Tuesday.
Saturday, July 9, 2016
4th of July!
For the 4th of July we went with my sister Ashley and her fiancée Zach on our boat for the whole day! It was the most fun I have had in a long time. At first we got on the wrong boat but we quickly realized our mistake and very maturely fled the situation (by running down the dock like madmen). Once we found our boat and uncovered it and pulled the sunshade umbrella thing out (I don't know what it's called) we got pelted with a bunch of hidden dead and alive spiders and jumped around screaming as Zach tried to get the gas cap on right. Finally everything was set up just fine, spiderless and ready so we untied the knot holding the boat to the dock and set off on an adventure! We sailed around White Bear Lake for 5 hours, dropping anchor on a sand bay across from where the boat slips were and swam around for hours even though the day wasn't particularly sunny or warm. On the way back to the slip the boat stopped working in the middle of the lake because my sister was trying to fix the radio that mysteriously stopped working (I was the one blamed even though i had't touched the boat). After about five minuets of fussing and panicking we got the radio to work and found out we had only turned the key the wrong way.
After we pulled the boat back in, we drove back to the house where we grilled kabobs and debated with my aunt about what to do for the fireworks as some of us wanted to go watch them on the boat and others wanted to just go down to the beach (going to the beach won out). After we ate we packed up the car and drove back to the lake to watch the fireworks (only after that did we realize we forgot to cover the boat back up, even still we did't bother with it). The next day we were picked up early in the morning by our sister and her fiancé to drive to the place to meet up with our mom to go home (only got lost once) and said our goodbyes. Once we got home we watched movies as a major storm went on around us-knocking out the power for hours as a tornado tore down all the power lines. The next day I came down with a fever and slept two days in a row. I would have to say this is the one time we didn't get the "you need to be nice to your sisters because you only have them for so long" talk. I don't even know why they give us that talk because we always get along. I would say that I have the best sisters in the universe! Maybe it's just a joke, but who knows.
After we pulled the boat back in, we drove back to the house where we grilled kabobs and debated with my aunt about what to do for the fireworks as some of us wanted to go watch them on the boat and others wanted to just go down to the beach (going to the beach won out). After we ate we packed up the car and drove back to the lake to watch the fireworks (only after that did we realize we forgot to cover the boat back up, even still we did't bother with it). The next day we were picked up early in the morning by our sister and her fiancé to drive to the place to meet up with our mom to go home (only got lost once) and said our goodbyes. Once we got home we watched movies as a major storm went on around us-knocking out the power for hours as a tornado tore down all the power lines. The next day I came down with a fever and slept two days in a row. I would have to say this is the one time we didn't get the "you need to be nice to your sisters because you only have them for so long" talk. I don't even know why they give us that talk because we always get along. I would say that I have the best sisters in the universe! Maybe it's just a joke, but who knows.
June and July
Now over a month later and with summer camp only two weeks away, we have found out the date of my surgery, which is scheduled at 8:30 am on December 8 with an acupuncture appointment in the pre op room, I think I'm all set to be fixed. My acupuncture doctor, Dr. Schwantes, said that he would come in before my surgery to do a needle pattern to calm me down and another one after my surgery if needed.
Because I am so active at home and bored all the time, my mom decided I should start dance again (classical ballet). So I will either start with summer or fall semester. I am really nervous because its been a little over a year and my back doesn't move like it used to, but I really hope I'm put at the same level that I was at when I quit. I am also worried that after my surgery I won't be able to dance the same as before (even though my doctor says I will). I am planning to dance all the way up to the day of my surgery to contain all my strength and flexibility so I shouldn't loose too much of it in recovery later.
Because I am so active at home and bored all the time, my mom decided I should start dance again (classical ballet). So I will either start with summer or fall semester. I am really nervous because its been a little over a year and my back doesn't move like it used to, but I really hope I'm put at the same level that I was at when I quit. I am also worried that after my surgery I won't be able to dance the same as before (even though my doctor says I will). I am planning to dance all the way up to the day of my surgery to contain all my strength and flexibility so I shouldn't loose too much of it in recovery later.
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